May 10, 2012
In June 2007, at just three weeks old, William broke out in a rash covering his face, arms and legs. It was eventually diagnosed as Sweet syndrome or acute febrile neutrophilic dermatosis-;a skin disorder that's very rare in newborns and usually associated with some kind of cancer, although there didn't seem to be any sign of cancer at that time.
After about 18 months of doctors' visits, hospitalizations and symptoms that confounded and frustrated everyone, William was finally diagnosed with JMML-;juvenile myelomonocytic leukemia and referred to the Pediatric Bone and Marrow Stem Cell Transplant Program at Texas Transplant Institute at Methodist Children's Hospital of South Texas in San Antonio.
William's mother, Sarah, was thrilled to finally find physicians who were determined to get him well. "They were very knowledgeable and worked quickly to get him better."
JMML is rare and its only treatment is a bone marrow transplant which William received from his sister, Emily, when he was two years old. While his road to recovery was a bit bumpy at times, William is doing great. He's now off all his medications and doing the things little boys love-;fishing, playing t-ball and chasing after his baby brother, Jacob.
William still has regular visits with the team at Texas Transplant Physician Group. Sarah now even considers pediatric nurse practitioners, Lisa McDonald and Julie Luke, part of their extended family. "Lisa and Julie are wonderful and William loves seeing them. He LOVES his clinic days."
Read more about William's story and follow his progress at Caring Bridge and JMML Foundation.